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for Information on Living With a Rare Condition

Patient Affairs Liaisons (PALs) can provide information on a number of topics relating to rare disease. View the videos below to see some of what they have to share.

  • The Role of the PAL

    PALs can be a source of compassion, commitment, and connection. Watch them discuss their role in their own words in this video.

    Connect with the PAL in your area here.

  • Insurance Review Webinar Video

    Health insurance can be confusing. To help understand your options, this video is divided into chapters to provide an overview of some health insurance basics. It also includes a download with a glossary of terms and suggested questions to ask about your plan.