RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.
Growth Hormone Deficiency
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Dream Big For GHD has information about growth hormone deficiency, links to patient advocacy organizations, and other resources.
DreamBigForGHD.com -
Facts About Healthy Growth:
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Read this to better understand how doctors track growth, what “normal” growth is, and when growth failure is an issue. -
The Stim Test:
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A Guide For Parents About Stimulation Testing: This piece helps to explain what a Stim Test is, and what to prepare for before, during, and after testing. -
An Overview of Growth Hormone Deficiency in Adults:
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This booklet will help you learn more about adult growth hormone deficiency. It will tell you what may cause it, how it may make you feel, and help you decide what to do next. -
Mapping Milestones:
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A caregiver’s journey guide to the treatment of growth hormone deficiency, this helps to outline what caregivers may experience when their child is diagnosed with growth hormone deficiency. -
Understanding Growth Disorders:
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Download this brochure for an overview to provide better understanding about growth disorders. -
We Have High Expectations Because They Do:
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This piece features an overview of growth hormone deficiency, information about Pfizer’s experience in growth hormone deficiency care, and sources for further reading. -
10 Important Facts About Growth Hormone Deficiency:
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Check out this infographic for a quick read about growth hormone deficiency facts.
Spanish language resource
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La Prueba de Estimulación:
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Una guía para los padres sobre la prueba de estimulación.
Patient Advocacy Groups
These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.
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Human Growth Foundation
hgfound.org -
The Magic Foundation
magicfoundation.org -
Prader Willi Syndrome Association USA
pwsausa.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
NORD
rarediseases.org
Patient Affairs Liaison Digital Brochure
A one page overview of the PAL program. Share this resource with someone in your life who may benefit from the support of a PAL!