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RESOURCES
for Living With a Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Engagement Team has put together a variety of resources that can be accessed anytime for more information.
Growth Hormone Deficiency (GHD)
GHD is a rare disorder in which the pituitary gland does not secrete enough growth hormone.
There are three types of GHD:
- Congenital GHD, which is present from birth
- Acquired GHD, which can be caused by trauma, infection, radiation therapy, or brain tumors
- Idiopathic GHD, where no known cause can be identified
Because the pituitary gland doesn’t secrete enough of the hormone that causes growth, patients’ height will be affected, and puberty delayed. Without treatment, GHD can cause growth failure, short height in adulthood, and other health problems.
Resources
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Facts About Healthy Growth:
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Read this to better understand how doctors track growth, what “normal” growth is, and when growth failure is an issue. -
The Stim Test:
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A Guide For Parents About Stimulation Testing: This explains what a Stim Test is, and what to prepare for before, during, and after testing. -
Mapping Milestones:
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A caregiver’s journey guide to the treatment of growth hormone deficiency. This helps to outline what caregivers may experience when their child is diagnosed with GHD.
Spanish language resource
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La Prueba de Estimulación:
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Una guía para los padres sobre la prueba de estimulación.
Patient Advocacy Groups
By clicking these links, you will be redirected to websites that are neither owned nor controlled by Pfizer. Pfizer is not responsible for the content or services of these sites.
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Human Growth Foundation
hgfound.org -
The Magic Foundation
magicfoundation.org -
Prader Willi Syndrome Association USA
pwsausa.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
National Organization for Rare Disorders
rarediseases.org
Patient Engagement Team Digital Brochure
A one page overview of the Pfizer Patient Engagement program. Share this resource with someone in your life who may want to connect!
MyHealthcareFinances
MyHealthcareFinances is a tool to help you better understand your finances related to health care and steps you may take to lower your costs.
MyHealthcareFinances está disponible en español: MyHealthcareFinancesEnEspanol
Stay Connected
If you are interested in speaking with someone from Pfizer Patient Engagement, click or tap below.