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RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.
Acromegaly
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Tracking your symptoms and injections is an important part of treating your acromegaly. And AcroTracker™ can help.
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Understanding Acromegaly:
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Learn about what acromegaly is, how it is diagnosed, and the signs and symptoms in this 2-page brochure. -
Supporting a Diagnosis of Acromegaly:
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Newly diagnosed? Check out this article for insights that may help. -
Rare Condition Patient Empowerment:
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Learn about what empowerment means and how you can work to achieve it in this article. -
Emotional Wellness With Acromegaly:
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Caring for your emotional state can be part of life with acromegaly; this article gives tips that may help you start. -
Acroline: Supporting People With Acromegaly Brochure
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A guide for friends and family of patients with acromegaly to help them understand acromegaly and how to best support their loved one. -
Acroline: Acromegaly and Health
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This brochure helps patients understand what acromegaly is, how it impacts their health in general, and how this knowledge can help them get the support they need. -
Acroline: Looking After Your Well-Being
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This brochure provides patients with suggestions of different ways to take charge of their mind and body after being diagnosed with acromegaly. -
Acroline: Self-Image Brochure
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This booklet helps patients cope with potential self-image concerns related to their acromegaly diagnosis.
Patient Advocacy Groups
These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.
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Acromegaly Community
acromegalycommunity.org -
Pituitary Network Association
pituitary.org -
Pituitary World News
pituitaryworldnews.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
National Organization for Rare Disorders
rarediseases.org
Patient Affairs Liaison Digital Brochure
A one page overview of the PAL program. Share this resource with someone in your life who may benefit from the support of a PAL!
Insurance Review Webinar Video
This 4-part series provides an overview of health insurance basics that may be useful to help you understand the available options and learn about coverage that may be right for you.