Acromegaly

for Living With Rare Disease

Living with a rare disease can feel isolating and overwhelming. The Pfizer Patient Affairs Liaison (PAL) team has put together resources that can be accessed anytime for more information.

Acromegaly is a rare disease, usually carried by a benign (non-cancerous) tumor, or growth, on the pituitary gland. The pituitary gland is a tiny organ in the brain. It makes many hormones, including growth hormone (GH). When someone has acromegaly, the tumor on the pituitary gland causes the levels of GH to rise. High GH levels can lead to the production of too much insulin-like growth factor I (IGF-I), which leads to signs and symptoms of acromegaly. Signs and symptoms can include joint pain; headaches; swelling of the hands, feet, and face; increased ring size; fatigue; and sweating.

Resources

Together With Acromegaly:
Learn about living with acromegaly and how to better manage symptoms.
togetherwithacromegaly.com
Find Together With Acromegaly on Facebook:
Visit Together With Acromegaly’s Facebook page for resources and more.
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AcroTracker™
Tracking your symptoms and injections is an important part of treating your acromegaly. And AcroTracker™ can help. Information is also available about a treatment option.
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Understanding Acromegaly:
Learn about what acromegaly is, how it is diagnosed, and the signs and symptoms.
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Supporting a Diagnosis of Acromegaly:
Newly diagnosed? Check out this article for insights that may help.
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Rare Condition Patient Empowerment:
Learn about what empowerment means and how you can work to achieve it.
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Emotional Wellness With Acromegaly:
Caring for your emotions can be part of life with acromegaly. This article gives tips that may help you start.
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Acroline: Supporting People With Acromegaly Brochure:
A guide for friends and family of patients with acromegaly. This may help friends and family understand acromegaly and how to help their loved one.
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Acroline: Acromegaly and Health:
This explains what acromegaly is, how it impacts health, and how patients can get help.
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Acroline: Looking After Your Well-Being:
This provides suggestions of ways patients with acromegaly can take charge of their mind and body.
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Acroline: Self-Image Brochure:
This booklet helps patients cope with potential self-image concerns having to do with acromegaly.
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