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RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.
ATTR-CM (transthyretin cardiac amyloidosis)
ATTR-CM is a rare and serious type of amyloidosis. It is not recognized or diagnosed as often as it should be. ATTR-CM affects the heart and is associated with heart failure. ATTR-CM can be caused by aging (wild-type) or inherited (hereditary). The liver produces transthyretin, a protein that carries the hormone thyroxine and vitamin A through the blood. When someone has ATTR-CM, the protein becomes unstable and misfolds. Over time, the misfolded proteins join together and build up in the body, including in the heart (causing the heart muscle to thicken and stiffen, eventually leading to heart failure).
Resources
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Your Heart’s Message:
yourheartsmessage.com
Learn about the signs and symptoms of ATTR-CM and how the disease affects your heart, hear from diagnosed patients, and access a guide to prepare for a conversation with your doctor. -
Caregiver Resources:
Visit now
A caregiver resources binder, as well additional caregiver resources, designed by Amyloidosis Foundation. -
Treatment Centers:
Visit now
Amyloidosis Foundation's list of treatment centers, organized by state. -
Get The Message Brochure:
Download now
Download to learn an overview of ATTR-CM, how to best prepare for a discussion with your doctor, and more educational information. -
Mended Hearts Discussion Guide:
Download now
Learn more about ATTR-CM and what questions to ask your doctor with this handy two-page guide. -
Mended Hearts Flyer:
Download now
Download this flyer for more information about ATTR-CM.
Patient Advocacy Groups
By clicking these links, you will be redirected to websites that are neither owned nor controlled by Pfizer. Pfizer is not responsible for the content or services of these sites.
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Amyloidosis Support Groups
amyloidosissupport.org -
Amyloidosis Foundation
amyloidosis.org -
Amyloidosis Research Consortium
arci.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
National Organization for Rare Disorders
rarediseases.org -
Mackenzie's Mission
mm713.org
Patient Affairs Liaison Digital Brochure
An overview of the PAL program. Share this with someone in your life who may want to connect with a PAL!
Insurance Review Webinar Video
This 4-part series provides an overview of health insurance basics. It may be useful to help you understand the options and learn about coverage.
MyHealthcareFinances
MyHealthcareFinances is a tool to help you better understand your finances related to health care and steps you may take to lower your costs.
MyHealthcareFinances está disponible en español: MyHealthcareFinancesEnEspanol
Stay Connected
If you are interested in speaking with a Patient Affairs Liaison (PAL), click or tap below.