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RESOURCES

for Living With Rare Disease

Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.

ATTR-CM (transthyretin cardiac amyloidosis)

ATTR-CM is a rare and serious type of amyloidosis. It is not recognized or diagnosed as often as it should be. ATTR-CM affects the heart and is associated with heart failure. ATTR-CM can be caused by aging (wild-type) or inherited (hereditary). The liver produces transthyretin, a protein that carries the hormone thyroxine and vitamin A through the blood. When someone has ATTR-CM, the protein becomes unstable and misfolds. Over time, the misfolded proteins join together and build up in the body, including in the heart (causing the heart muscle to thicken and stiffen, eventually leading to heart failure).

Resources

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    Your Heart’s Message:
    Learn about the signs and symptoms of ATTR-CM and how the disease affects your heart, hear from diagnosed patients, and access a guide to prepare for a conversation with your doctor.

    yourheartsmessage.com
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    Get The Message Brochure: 
    Download to learn an overview of ATTR-CM, how to best prepare for a discussion with your doctor, and more educational information.

    Download now
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    The Devastating Impact of Cardiac Amyloidosis: 
    Learn about the physical and social impact and emotional toll of ATTR-CM on patients.

    Download now
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    Mended Hearts Discussion Guide: 
    Learn more about ATTR-CM and what questions to ask your doctor with this handy two-page guide.

    Download now
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    Mended Hearts Flyer:
    Download this flyer for more information about ATTR-CM. 

    Download now

Patient Advocacy Groups

By clicking these links, you will be redirected to websites that are neither owned nor controlled by Pfizer. Pfizer is not responsible for the content or services of these sites.

Patient Affairs Liaison Digital Brochure

An overview of the PAL program. Share this with someone in your life who may want to connect with a PAL!

Download now

Insurance Review Webinar Video

This 4-part series provides an overview of health insurance basics. It may be useful to help you understand the options and learn about coverage.

MyHealthcareFinances

MyHealthcareFinances is a tool to help you better understand your finances related to health care and steps you may take to lower your costs.

Learn more

MyHealthcareFinances está disponible en español: MyHealthcareFinancesEnEspanol

Stay Connected

If you are interested in speaking with a Patient Affairs Liaison (PAL), click or tap below.

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