RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.
ATTR-CM (transthyretin amyloid cardiomyopathy)
-
Your Heart’s Message has information about ATTR-CM and its signs and symptoms, details on how ATTR-CM is diagnosed, guides to discussions with your doctor, and educational resources.
yourheartsmessage.com -
Coping With a Diagnosis of ATTR-CM:
Download now
Newly diagnosed? Check out this article for insights that may help. -
Supporting Your Journey is Key:
Download now
Download this article to read about building a support network as part of your journey with ATTR-CM. -
Get The Message Brochure:
Download now
This focuses on understanding ATTR-CM, its diagnosis, signs, and symptoms, and provides resources to support patients. -
Get The Message Flashcard:
Download now
Download this one-pager to get an educational overview on ATTR-CM signs, symptoms, and resources.
Patient Advocacy Groups
These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.
-
Amyloidosis Support Groups
amyloidosissupport.org -
Amyloidosis Foundation
amyloidosis.org -
Amyloidosis Research Consortium
arci.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
NORD
rarediseases.org
Patient Affairs Liaison Digital Brochure
A one page overview of the PAL program. Share this resource with someone in your life who may benefit from the support of a PAL!